Many people don't know that Marilyn had Endometriosis like me. She had multiple miscarriages and a tubal pregnancy. She had emergency surgery and taped a note to her own stomach begging the doctor not to remove her uterus because she wanted to get pregnant. Many can't agree on her dress size. Looking at this photo, I understand and relate. That's not a pregnant Monroe despite speculation. It's
Many famous women have endo including Dolly Parton, Halsey (who suffered a miscarriage on stage), Susan Sarandon, Whoopi, Padma Lakshmi, Alexa Chung, Cyndi Lauper, Emma Bunton (Spice Girls), Amy Schumer, Daisy Ridley, Emma Watkins (The Wiggles), Meg Cabot (author of princess diaries), Jillian Michaels, and more.
It's theorized endo pain played a role in Monroe's addiction issues.
I thought I'd start with this interesting story before my catch up.
I wanted to catch up with everyone. A lot has happened since my first post! I want to say thank you to everyone who read it and sent me kind messages. I super appreciate it.
Sean and I made the decision to take the referral to AART after
researching everything in a local support group about infertility.
We still don't have the money for full blown IVF but our consultation will be paid for by insurance. I may qualify for a laparoscopic surgery that could clear my tubes, check the state of my eggs, and remove some endo. For that alone I think it's worth it for me to pursue. They may be able to suggest some less invasive treatments and interventions depending on what they see. It's a 6-8 month wait, but once my tests start coming back I may be able to get on the cancellation list. Hopefully I don't have to wait that long.
I am feeling better about this decision and my future now. A bit more hopeful than I was when I started this blog. The gyno had told me to choose between fertility or pain - which was more important? You might think fertility but my pain is awful too so they feel the same to me. What a choice to make!
In the meantime this is what I am currently doing to manage my pain:
Since I made my last post, I made the decision to sell my silicone performance tail to a good friend. It wasn't an easy decision, but my endo really made it difficult to use this costume. It hurts my hips and pelvic floor and can't accommodate bloating or flares. As a result I haven't used it in about 1.5 years! I feel guilty having it just sitting there all the time. It's worth a lot and I know given everything the money could be put to good use. I am so glad it's going to my friend as she will totally love it and the tail will have new life. It's hard to give things up because of my endo. Really hard. But the fabric tails are so much easier and I thankfully have so many to choose from to keep me swimming. Maybe this old silicone tail will end up in a museum some day.
Things are locking back down here however. We are one of the safest places in the world but cases are still climbing right now so we decided to drop bubbles from 10 to 5. Sean and I are going to be home bodies in hopes we'll be able to go back up to 10 for Fishmas. In the meantime we're trying hard to be creative. In the tails you see above I just received the pink one (modified for the FF1) and I WILL be receiving the Narwhal tail for the 4. Though there's nowhere to swim right now!
Other than that as I sit here typing I am fighting off an endo flare. I could feel it coming days ago so I have been working my butt off to do what I can to offset the pain. Resting lots, loads of water, all my supplements, early pain meds, got the hot water bottle nearby and went for a massage this week. I am thinking of adding in acupuncture. I read it can help endo pain along with infertility stress.
One last thing I'll share with you is a video of me doing a minute breath hold. Remember, I have training and a safety spotter. (person spotting me is a rescue diver). My personal best for breath hold was 3 minutes stagnate. My average is typically 2-2.30 but I haven't practiced all year due to covid and lack of pools, I also recovered from histoplasmosis. I can typically at least do a minute without practice. Thought folks might want to see :)
I also have a video that shows some of the fun stuff we did over my covid birthday! Check them out.
Infertility and the Mermaid
Raina is a professional mermaid who also experiences endometriosis and infertility. This blog documents her life with these issues while trying to maintain a performer lifestyle.